Lyme

Infusio – What to Expect

8 minutes to read

I went into Infusio with almost no knowledge of what they did or how they did it. It was hard to find an exact day to day list of therapies, moods, or what to expect. This is all based on my experience. Start here, if you haven’t already read the old posts.

Note: Infusio is changing things all the time and tweaking how they operate. This may change. As of January 2018, this is how it was.

 

  1. The most important thing (I think) you need to know is that Infusio is not easy. It’s not a mellow day spa. It was one of the hardest things I’ve ever done.
  2. The main areas you’ll be in are the Penthouse and 3rd floor. The penthouse is the most spa-like environment and the outdoor patio is your escape from the noise and constant movement.
  3. You will receive a printed schedule of your therapies for the 10 days. This is super helpful. Rather than carry it around all day, take a photo with your phone.
  4. Each day is divided into two three hour blocks: IVs and other therapies. This alternates every day. Sometimes IVs are in the morning, sometimes in the afternoon. Lunch is one hour.
  5. Most days ended around 5pm.
  6. Therapies currently include: Novo Bed (10-20 mins), Thymus shot, massage (20 mins to 1 hour), NAD shots, Global Diagnostic (30-45 mins), Hyperbaric Chamber (45 mins), Squish Pants – SlimYonik (45 minutes). You have a 1/2 hour to an hour block for each therapy.
  7. You will have one short consultation with a nutritionist via Skype. This is not the end all be all of your nutritional journeys, but he did offer some nice advice, especially to those just starting out eating better.
  8. The NAD shots (12 total, every other day) hurt like a mother. Mentally prepare yourself. Breathe and relax. I had NO idea I’d be getting 8 shots in the stomach and 4 in the back. Breathe and relax.
  9. You’ll be getting anywhere from 3-7 bags of IVs per day. This is hard. Your arms and veins get really tired.
  10. You’ll be doing therapies on both the 3rd and Penthouse floor. Lots of walking. Wear comfortable shoes. Got Uggs? Slippers? Wear ’em.
  11. California weather is cold to moderate in the Winter (40-80 degrees), gorgeous and comfortable (sometimes cool and rainy, 75-85 degrees) in the Spring, hot as hell in the Summer (80-110 degrees), and cold and dry in the Fall (50-75 degrees). Winter, Spring, and Fall are generally cool. Bring a sweater. Compared to the rest of the country, this is mild. Skies are usually clear, but we do have smog that ranges from Moderate to Unhealthy.
  12. LA Traffic is whack and Beverly Hills is not freeway adjacent. Add 15-20 minutes to most destinations. Beverly Hills is VERY close to West Hollywood, but Hollywood is a little bit of a drive through city streets.
  13. Ask for what you want and need. I’m a shy little thing in person. I don’t like to bother people, but I found that the staff is happy to help and they want to make you feel comfortable. Don’t act like you own the place, but if you need something: Ask.
  14. A neck pillow would have been super helpful. The lounge chairs aren’t actually that comfortable – although I hear they’re better than the ones before. You’re sitting for long periods of time. Make sure to get up and stretch if you’re able – or move to another part of the floor.
  15. Drink lots and lots of water. You’re getting pumped with vitamins, getting massage, and doing major detoxing. You need to stay hydrated.
  16.  I know it’s fancy Beverly Hills, but dress comfortably. I was all trying to look nice and it would have been better if I showed up in loungewear and Ugg boots.
  17. Reading is hard when you’re hooked up to IVs. Skip the analog books and download some audiobooks ahead of time.
  18. Bring sunglasses. The IV lounge is SUPER bright all day long.
  19. Bring an eye mask for the Novo Bed (Light Coffin). The lights are painfully bright and hurt my eyes.
  20. Noise canceling headphones or earplugs might be useful to those with noise sensitivity. The IV lounge can be very loud and chatty at times.
  21. These are long, 9 hour days. I had no idea and was kind of frustrated. It feels like you’re in a medical Summer camp, running from one activity to the next.
  22. The entire experience is emotional! Me and just about everyone else had emotional breakdowns at one point. You’re working hard and kicking ass. Most of us don’t leave the house for 10 days in a row, 9 hours at a time. This shit is hard! Give yourself credit and go easy on yourself. Feel what you need to feel and move on. Don’t suck it up, cry if you need to cry. There are places you can hide out if you need to.
  23. I don’t recommend going out exploring for lunch. Judi’s Deli is fine and right downstairs. I know a lot of people have never been to Beverly Hills, but right now, just make life easy for yourself. My lunch every day was the vegetable teriyaki without the sauce, brown rice, and a green juice from Pressed Juicery across the street. Same same. Easy.
  24. You can bring a companion, but they will be very bored. Have them bring what they need to entertain themselves so you don’t have to worry about them. It’s nice to have someone there with you. Hopefully, it’s someone who understands this is difficult and you will be tired and emotional.
  25. The Penthouse has Wifi, but outlets aren’t usually in convenient places.
  26. I don’t think Infusio objects to your bringing your kids, but please don’t (if you can help it) for the sake of the other patients.
  27. I know you’re nervous, but try to let people rest. Talking all day is exhausting. I don’t know how people do it. The best thing for your health and the sanity of the other patients is to be friendly, but don’t talk their ears off.
  28. There is a pharmacy on the ground level in the same building if you need to buy anything. And a Rite-Aid on the corner.
  29. For those coming from out of town – I heard from other patients that staying in an Air-BNB was much more relaxing than the hotels Infusio recommends. I live local, so I went home every day. However, we also endured two hours of grueling traffic coming and going. If you live local, you might want to consider doing the hotel or Air-BNB.
  30. Infusio isn’t generally forthright with the information. I don’t think they quite understand that Lyme patients have been taking care of their own selves for years. We’ve been our own doctors, our own research assistants, and often our own cheerleaders. We have questions and we want to know what the hell is in that IV bag. I had to ask about EVERYTHING. At first, I felt nervous and bothersome, but whatever. Just ask.
  31. All the staff and doctors are super nice. I loved everyone there.
  32. Understand that Infusio is in its infancy and they’re figuring things out as they go. I believe the science is sound, but the implementation needs tweaking. They’re pretty darn close. It may be helpful to understand this, that they’re not perfect and they really are trying to help us all.
  33. 25k does not entitle you to 24/7 personal care by the Infusio staff and doctors. I know, this sounds harsh. 25k is a lotta lettuce. You are not their only patient and Dr. Kim is the only doctor on staff. 6 new patients per week makes 24 per month. Do the math. It’s not ideal and you are spending a lot of money to do this, but try to have some compassion for those who have compassion for us. Like I said, they are new to this and they are figuring it out. No one else is working this hard to tackle lyme on a physical and emotional level. Just be patient with them. I believe they know what they are doing, but we’re all basically the early adopters, the alpha testers. I say this with the utmost sincerity, I believe Infusio really cares about their patients, but they are overworked.
  34. You do not have to talk to anyone if you don’t want to. Build your little island and rest if you can. Don’t feel pressured to chat.
  35. Set your expectations now. This is NOT an instant results treatment. You may get a small boost during or right after Infusio, but you will be up and down physically and emotionally during and after. Don’t expect to feel bad, but understand this is a long process. They say up to a year for full results.
  36. If you haven’t already, stop eating wheat, gluten, sugar, and dairy. Just don’t eat that crap. It creates inflammation.
  37. The stem cell procedure will take place on the Wednesday or Thursday of your final week. This is a half day.
  38. They want you to wear loose-fitting black clothes for the procedure day. I wore a lightweight black pullover and sweats.
  39. Phil Battiade is not usually around. He may pop in now and again, but he’s not really there to chat or answer questions. When I was there, he was in and out, working, running around. Dr. Kim is also not around all the time, but she will sit down with you and answer questions. If you have questions, right them down and take them with you.

This is a long list, but I hope you find it helpful. If I have more to add, I will do so as time goes on. If you have questions, don’t hesitate to ask. Post questions in the comments.

 

4 Comments

  • linda

    wow. whatta tale! i’m exhausted reading through the entire blog and somewhat concerned that you’ve got all these new symptoms… did they explain that this would happen? how do you REALLY know that this is working? 25K is a big investment…someone on the healing well site made me suck in my breath when he announced:

    greatguy
    Regular Member

    Email Address Not AvailablePersonal Homepage Not Available
    Date Joined Dec 2017
    Total Posts : 104
    Posted 1/14/2018 5:50 PM (GMT -6) Quote This PostIgnore Posts From greatguy.Alert An Admin About This Post.
    Not to scare you or anything, but there are people who had lyme, got stem cells and died. Stem cells when there’s no lyme, may not be too dangerous, but with lyme, it is another story. Still, the people that died from stem cells were some of the sickest, so if you don’t have a lot of sensitivities, then go do it.

    soooo….?? i get freaked out not knowing if something is SAFE. what did infusion say or do to reassure you that everything they offered you was ultimately not harmful..? i SO would like to do this – slumber party girls or not. also, my understand is that the give you a 6-month home protocol – what is that all about?

    thx muchly!

    linda

    • Kristen Simental

      Hi Linda, I have not personally heard of anyone dying from stem cells. The worst I’ve heard is symptoms getting worse or no improvement at all. For those that did not improve, there is no telling how bad they were or what kind of lifestyle they lead. Stem cells are not foreign, they are your own stem cells being replicated and put back into your body from your own fat. I suggest you visit the Infusio Exchange on Facebook and ask this question there. — No doubt, Infusio is hard work, but I believe it’s going to help me. I’m currently two months out and do not feel worse. — The home protocol is various helpful supplements, teas, and routines to help us get through the post stem cell phase. It includes natural anti-histamines, natural anti-inflammatories, and meditation – things like that. It’s not harmful at all. Infusio is not easy and it is a rollercoaster. Nothing is a quick fix with Lyme. Even the Hansa Clinic is hard. You have to choose what’s best for you. Try not to listen to ONE GUY online. Ask at the FB page and look for real answers. Like I said, I never heard of anyone dying from stem cells, but get as much info as you can.

      EDIT: I messaged Phil on Ask Infusio. If I receive an answer, I will contact you and update here.

        • Kristen Simental

          It’s really hard to tell. Everyone is different. Your diet, lifestyle, age, the severity of illness, mental attitude all come in to play. To be sure, it’s taking a chance. For me, I had to try. The truth is, not everyone recovers fully with Infusio, but a lot of people do. The odds are in favor of seeing some good results. It’s not a genie in a bottle. Nothing is, sadly. It’s all hard work and expense. If you go it alone, you’ll still spend that much in a year – most of us do. My first year we probably spent 10K in doctors, supplements, and therapies. More the second year. Lyme is not cheap. I will say this, right now, I am having more good days than I did before Infusio. Not great, but better.

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